Tuesday, June 21, 2011

It's been a while



I don't know if anyone is even out there anymore... but i figured it was time after a few inquiries about my whereabouts and my lack of posts on this blog, i figured it was about time.

There have been so many exciting things going on that i just haven't had much time to sit at the computer to write. I guess no news is good news when it comes to my health :)

I do have some pretty good news on the health front. I had my 7 month clinic visit (tomorrow is my 7 month anniversary) and i was able to blow a 94% FEV1 in my pulmonary function test!!! I don't know when i ever blew a number that high... probably when i was swimming as a little girl. Holy crap, right? I know it is awesome!!! Other than that things are really stable. My prograf level has been consistently where they want it for about a month now, which is such a relief. It was all over the place for a while. I am finally going to be having a bronchoscopy after all this time. They are going to do one to make sure everything is nice and happy in there. I figure it is time for me to get one in and join the ranks of the transplanters on this one...

Other than that I have been working out a bit, and trying new adventures and making good use of these new lungs. I am swimming still. Today i swam 44 laps in 40 minutes which is 4 laps more and faster than last week. I have been attending transplant bootcamp, at the stanford track every week as well. I also started yoga. so i have been staying active. The transplant bootcamp has been publicized a bunch lately in local media. Here is a great article from the SF chronicle http://articles.sfgate.com/2011-06-13/entertainment/29651934_1_double-lung-transplant-games-transplant-survivors

Other random activities i have done are iceskating, fishing, boating, hiking, biking, couponing, and cooking. I have spent many visits with friends. It is so nice to have the energy to do all of these things that i want to do. I feel like i am making up for lost time and running around like crazy.

I am also working on planning the CFRI teen and adult retreat this year, as i have for the past 10 years!!!! So crazy how time flies. I have been more active this year as i obviously have more energy and time to help out.

I also recently became a board member for Richie's Spirit Foundation. It is a great organization focusing on organ donor awareness. You can check it out http://www.richiesspirit.org/

Well, I need to go make dinner. Portobello mushroom burgers with provolone melted on top. Served on a whole wheat bun with lettuce, tomato, pickles and onion. With a side of corn on the cob, baked beans, and sweet potato fries. Delish? OH YA!