Yay for pie

I know why i love casey, he makes pie! We made apple pie with apples from my mom's garden. OH MAN, this should win awards. My mother almost died when she ate it. Casey and I are completely satisfied after eating it. OH YEA.... YUMMMMM. This was a nice weekend, we went out to dinner to Flea St. Cafe, in Menlo Park, to celebrate our comittment with my parents. It was a great meal. I had halibut encrusted with herbs and flower petals. Casey had a delicious steak. Before dinner Casey (the crazy person) rode 76 miles on his bike. WOAH BABY. He is impressive. Well, i guess that is all i have to say now. The pie was so good.... I just had to brag.

can you walk and chew gum?

Well, it is official, Mccain is a magician, or should I say a master of distraction. I am so annoyed with the damn McCain campaign I could just poop. Ooops, just did. hehe. No but really, is McCain really that scared to talk about the issues, the SERIOUS issues, that he has to appear like he cares, and tries to cancel the debate? MAN, this guy is ridiculous. Also, I think this was a stunt to get the VP debate (expected next week) to be rescheduled, so poor little Palin doesn't have to speak for herself. I can't believe this. Well, I guess we should have expected it. Everything he does is a stunt. I am scared for this country if he becomes president. He is so impulsive, but at the same time slow, he doesn't think. Seriously, i don't trust a man who hires someone he met one time, then keeps her from the press (becasue she can't be trusted to answer questions correctly), and then cancels his campaign to be a "hero" and go solve Washington's problems, and can't have a debate. THEN I hear that he cancels his appearance with David Letterman, and doesn't actually go back to Washington till tomorrow, and does a interview with Katie Couric instead. The funniest is that David Letterman got Keith Olbermann to fill in for McCain's spot. That is going to be a serious McCain bash tonight. You should watch!
Anyways, I can't believe this whole stunt...... frustrates me.

Other than that, I ended IVs today!!!! YAY!!!!! I also talked to my good friend Alanah. She is the cutest person. I have to do the worst thing tomorrow... LAUNDRY. POOOOOOOOOO. I can't stand laundry. It annoys me. Well, it could be worse, I could be in the hospital, and I am not, so life is good. I am thankful to be well enough to do laundry, but it is one of those things in life that is just so monotonous. OK< enough from me for now. I gotta go get ready to watch Letterman... hehehe.... GOOOO KEITH!

Robin (the momma)'s birthday!!!

Today is my moms birthday. I won't announce her age to the world, but I will take the time to sing.... eh hem....

HAAAAPPPYYYY BIRRRTHHHDAYYYY TO YOUUUUUUUU
HAAAAAPPPPYYY BIRRRRRTHHHHDAAAYYYYY TO YOUUUUUUU
HAPPYBIRHTDAY DEAR MOOOOOMMMMMMMMMMAAAAAAA
HAAAAAPPPYYY BIIRRRRTHHHHDAAAYYYY TOOOOOOOO YOUUUUUUUUUUUUUUUU

I love you mom!

Caseys new bike and cupcakes!

Casey got a new bike today. He has been waiting for it for 3 weeks, and shopping for it since June. Needless to say he is very excited in anticipation. Well, today I took him to the shop and dropped him off for a ride home on his new Felt F3 bike. Can you tell that he has been talking about it? haha.... I am very happy for him. He deserves a new toy since he has been so dedicated to his biking and he has a ride up mount diablo next weekend. So this will be great. Also, this is the first post from my NEW computer. I think I like it for the most part, vista is a bit annoying, and I can't figure out how to make the webcam work, but other than that it is great. Hasn't crashed yet. Hopefully that takes a few years for that to happen. Yesterday was a very fun day as we found a gigantic sale on bathroom tile. We are going to redo the bathroom, and to a thrifty shopper, a sale was right up our alley. I can't believe we actually found stuff that was perfect for us. We hadn't decided on the floor tile yet because all the stuff we wanted was out of our range. WELL, the sale made things much more reasonable. We got 12dollar a square foot tile for 4 bucks! What is that like 70 ish percent off? AWESOME. So now we get to put in stone like we wanted. Now I just gotta find a tile guy and a great contractor that doesn't cost too much... good luck to me for that one. We also discovered a CUPCAKE store. We ended up getting too many because they all looked so good and we wanted to try, so we might be in sugar comas for the next few days..... hehehe... I tried the coconut and the carrot one last night. YUMMY! I like them because they have lots of frosting. Kara's Cupcakes in Palo Alto, they also have on in SF. So that is all for now... i gotta go eat a cupcake. hehehe..... (devious smile here).

Sad day......

I just received an email from my very best friend, and her boyfriend/lifepartner, just left to be deployed. He was done with his obligation, but was recalled because of our fabulous problems in the middle east. I am sitting here listening to the song that makes me so happy because it reminds me of my love, and i can't imagine how it would feel to have the love of your life swept away suddenly. They had about 3 weeks to prepare for this day....... When you think you will spend the rest of your life with someone and they are all of a sudden gone..... for about one year, maybe a little more...... I am just sending Emily my love and thoughts. I can't imagine how it could feel. But I am wanting to be here for her, and to support our troops, and LETS GET THEM HOME!

To Mac or to PC?

Yesterday I went to look at a couple computers at Costco. I currently have an HP and I like HP. I wish I didn't have to get a new computer because Windows Vista appears to be a problem. I was trying to decide about the possibility of switching to Mac. My sister and my mom have one but My dad and casey and I have a PC, Sara used to have PC but she just recently switched. I must admit I don't really like either option. The Vista was annoying and I know how everyone says how user friendly Macs are, but I just don't like it. It feels backwards to me. Yesterday I decided I was just going to bite the bullet and get HP again, but now I am just not so sure. I went with Casey to the barber shop, where they had lots of boy magazines and i read an article about vista, it is crap. It blue screens, which I didn't want because this computer does that too.... We tried all we could to save my computer but we think it has a hardware problem which isn't going to be fixable (without spending some cash). So I am sitting here with this dilemma of Mac or PC, I just don't know what to do. If anyone has any suggestions I am open to it, BRING IT ON.

Other than that... I am feeling very rested now. I have allowed myself to sleep and rest and this week allowed me to get to a rested place I have not been since before grad school (4 years ago). I seriously haven't felt this rejuvinated in a long time. Hopefully I will be able to use this and get some stuff done, but I like the feeling of not being overscheduled, and overstimulated. I might try to hang on to it for a while. Well, that is all i have to report now. Maybe I will go with my dad to check out some more computers. grrrr... computers can be so frustrating!

Sleepy

I am one tired cookie. This IV stuff is wearing on me. I feel like when I had mono and every time I sat down I fell asleep. I took 3 naps today, and even so, i still had a pretty productive day. I am sitting here waiting for my sister to finish talking to her cute boyfriend and talk to me on Aim, while she is in Venice. I am very excited to talk to her, as I am about to pee in my pants. hehe. Other than that, I had a nice conversation with my friend Alyson today. I am very excited for her as she has met a nice boy. well, a man, but I like to call them boys. So i hope things go well for her on that front. I also have a new addiction to Frozen Yogurt. It is the devil and i love it!!!!! I think last week i had yogurt or ice cream every day. I went with our family friend Janet and her niece Allison to get yogurt today. It was delish!!!!! And they were nice company as well. Well, my newest adventure is that i get nauseous when i get one of my meds. It is really fun to wake up in the morning almost puking. Tonight it got me too, and i am trying to shake it off. Any smell bothers me... it is great fun! Well, my sister in going to talk to me now... so I am going to go....

Woah, Joe!

Today I couldn't sleep while I was doing my infusion, so i got up to make tea and watch "meet the press". Well, Joe Biden was on the beginning of the show, and he said something that seemed to boggle Tom Brokaw's mind. Now, a little history about meet the press, I loved watching meet the press with good old Tim Russert. Unfortunately as many of you must know Tim suddenly died this summer. I watch all of this political stuff going on wishing that he was here to comment on it, because he was the best of all. No BS Russert. He would ask the real questions and would NOT let people get away with the crap they are getting away with right now. He would have a field day with the Sarah Palin stuff. SO Tim, I think of you often, I hope you are watching from somewhere, hopefully he will watch over us and make sure this country doesn't make the biggest mistake of it's life. ANYWAYS>..... Joe this morning was asked what he believed about abortion, and when life begins. Joe responded that he believes life begins at conception. Which is a different answer for a democrat. Tom replied, Really? or something, he seemed to be a bit shocked. Joe continued with Yea, I believe this, but that does not mean that others do, and it should not mean that others don't have a choice. He even said the words, my religious views should not become that of the government. It was the biggest breath of fresh air I have heard in a while. I have so much respect for Joe now and I hope all of you who don't like him will consider his position on this.

Awakening

This week has been long and filled with many different experiences. I had my doctor appointment with the new head of the CF center...... I was pretty impressed with him. Granted, I was the one who looked at my sputum culture results and determined I should switch antibiotics, but he gave me the respect that I wanted and determined that it would be best to switch up the meds. You see, when we start IV antibiotics, it is always using the sputum culture form the time before, which could be months ago. It takes about 5-7 days for the results to come back, so once you are already in the swing of the meds, you may need to change the meds. I was not seeing the results i usually do with the meds. So it actually made me happy to see my culture and understand why I wasn't getting better as i would like. The bad thing is that I am going to have to do an extended course of IVs, starting 3 weeks from wednesday, instead of 3 weeks from 2 weeks ago :( but oh well, i want to get better. Also, I have to mix this new medicine. It actually adds about 3 1/2 hours to my day. I am now going to be spending 5 1/2 hours infusing and 1/2 hour mixing meds. It is quite a lot of work. So that is basically a full time job, because then you add my 3 treatments per day which is another 1 1/2 hours and you get a full 8 hour day of CF stuff. That is not including making nebulizers and cleaning nebulizers. So I have my work cut out for me.
I also had my appointment with Ken, the port dude, and he fixed my hole. He used some superglue to pull my skin together, and put some steri-strips to keep it all closed up. He said it was about 80% healed. Casey was able to do a nice re-accessing job tonight, where he changes the needle that I have had all week. This port is much easier to find, since you don't have to go sifting through my cleavage. So that is getting better and will be just fine soon.
My mom and sister left today for England and rome and venice. They have to travel for 24 hours because they used frequent flyer miles, and you don't get to have the best options for free flights. But at least it is free! I am going to miss my sister... 3 1/2 months is a long time. So I had to say bye to her yesterday. Sad, but she deserves to go have a great time! Bon Voyage Sissy!
Last night Casey and I went to see the opening night of "Spring Awakening" at the Curran theater in SF. We went with our friend Linda, and some of her friends. It was a good show. The music was fantastic. It was a perfect example why abstinence only education is not a good idea.... It was definately a good musical. I must say though, nothing I have seen compares to RENT, that is my all time favorite show! Tonight we saw Wall-E which i am such a dork and slept through most of. I can't stay awake at the movie theater. I tried, but to no avail. I saw some of it, but my eyes were closed a lot of the time. Stupid. I think i need toothpicks or something to stick in my eyeballs. Anyways, that is what I have been up to.

update

Well, I have been in the land of politics, loving the drama of it all.  You really can't make this stuff up.  But i must say that I am scared of the alternative to Obama being president, but lets not even go there right now.  

My port is not healing as well as I would have liked.  I have to go in tomorrow and get it looked at.  I might have to have a new stitch put in.  So that will be loads of fun tomorrow, but I will have my charming mom accompany me through it.  I also have to have a follow up CF appointment with the New Docs at stanford.  For those of you reading this who don't know, Stanford CF center has made a gigantic change with a new director, and the development of a real Adult CF Center. However, in this change, my absolutely beloved doctor, Dr. Upadhyay, will no longer be with the CF center, and now I have to have a new doc.  I am pretty annoyed with this, but it is just how it is.  So i have to meet a new doc tomorrow.... a little anxious i must say.  so tomorrow is doctor day. 

I spent the day with my cute sister and her cute boyfriend Lou.  I enjoy my family. My sister leaves on Friday morning.  HOW SAD.  I will miss her, but she will have a great experience out there in London land.  So I am off for now. I will put an update on my port soon.